April 3, 2025
A Gathering of Hope: Reflections on Rare Disease Events Arou
Rare diseases affect many people worldwide, yet for many, finding the proper support, treatments, or even a community to lean on is a struggle. Unlike common illnesses, rare diseases often lack the visibility, funding, and research to develop effective treatments. Patients and their families feel lonely, desperate for information, and uncertain about the future. …
Akruti.Sinha
April 3, 2025
A Gathering of Hope: Reflections on Rare Disease Events Arou
Rare diseases affect many people worldwide, yet for many, finding the proper support, treatments, or even a community to lean on is a struggle. Unlike common illnesses, rare diseases often lack the visibility, funding, and research to develop effective treatments. Patients and their families feel lonely, desperate for information, and uncertain about the future. …